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Financial help and grants

Families often need financial help that goes beyond equipment. Travel for specialized care, therapy costs, emergency needs, and rare-disease-related expenses can create major gaps even with insurance or Medicaid.

NORD Patient Assistance Programs

NORD offers patient assistance programs for people living with rare diseases, including support for medication access, insurance costs, diagnostic testing, and travel.

Christopher & Dana Reeve Foundation

A practical resource hub for grants, community support ideas, financial-assistance guidance, and information about durable medical equipment.

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National Disability Resource Project

A Colorado nonprofit publishing free, independent, plain-language guides to disability services, benefits, and rights.

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© 2026 National Disability Resource Project. Information on this site is for educational purposes only and is not legal, medical, or financial advice.

Medicaid waivers by state, Katie Beckett programs, TEFRA pathways, HCBS waivers, developmental disabilities services, intellectual disability waivers, Medicaid eligibility for children with disabilities, home and community-based services, parent caregiver pay, waiver waitlists, state disability resources, SSI and SSDI for disabled children, special needs trusts, ABLE accounts, transition planning for adults with disabilities.